16/18/21 Year Olds Questionnaires
JIA can be a chronic disease extending into adulthood and, unfortunately, previous studies have suggested that up to 30% of children will continue to have active disease. In addition, prior arthritis may have future implications for children as they reach late adolescence and adulthood, including impacts on education, employment and social life. It can be very difficult to obtain this information, making it difficult to understand the impacts. So therefore, to try and improve our understanding of the impact of chronic illness in general, and JIA in particular, on adolescents and young adults, CAPS has introduced questionnaires at 16, 18 & 21 years. As many families and clinicians have been interested in more long-term outcomes the 16/18/21 questionnaire data you provide will help us to address the long-term impacts of JIA.
These questionnaires will be posted directly to you when you reach the key stage ages of 16, 18 and 21.
It is possible that when you first joined this study, as you were not yet 16 years of age, the consent for your participation may have come directly from your parent or guardian. As you are now older, we would like to ask you directly for your consent. We would encourage all young people to re-consent to the study themselves at 16 years. The re-consent form and 16 year questionnaire will be sent just after the sixteenth birthday. The 18 and 21 year questionnaires will be sent thereafter. Once again, it is extremely important to follow-up all study participants.
If are 16 years old or older and you haven't signed a Patient Consent Form then please get in touch below, including your address details, and a consent form will be sent to you immediately.