The CAPS Pain App - 'This Feeling' Aims:
To assess the psychometric properties (reliability and validity) and acceptability of an iPad app developed as a self-report tool to aid children with juvenile idiopathic arthritis (JIA) to communicate about their pain.
•Develop a more accurate understanding of pain in children with JIA
- Pain most common symptom in JIA
- JIA pain has been associated with inflammation, stiffness, disease activity and duration
- Pain in JIA can persist when inflammation is successfully treated
- JIA pain is associated with reduced participation in school and social activities
•Assess relevance & contextual appropriateness
Specific Research questions to be addressed:
•Is the iPad app a valid measure of self-reported pain?
•Do pain data collected by the iPad pain app correlate with clinical assessments of disease activity
•Is the iPad pain app a reliable measure for measuring pain in JIA patients of different ages (5-8, 9-12, 13-16 years)?
•Do JIA patients prefer completing the app compared to existing measures of pain?
The ‘CAPS Pain App - This Feeling’ sub study was introduced to CAPS in August 2013 and is currently being run at Royal Manchester Children’s Hospital. The current project is part of an interactive and multidimensional process measuring pain. To date approximately 35 children aged between 5 and 16 years old have participated.